Environmental Control System Opening Doors and Lives Computers give quadriplegic veterans independence, dignity and hope By Brad Bass Supplement to Federal Computer Week Page 13 Airman 1st Class David Cantrell was fully conscious during the accident that took away his ability to use his legs and hands and severely limited movement in his arms. On a clear fall afternoon in 1985, he and four Air Force buddies were on their way to a small-game hunting ground not far from their base in Oklahoma City. Cantrell, who at age 22 stood 5 feet 9 inches tall and weighed l800 pounds, fell asleep in the cramped back seat behind the driver. The Jeep sped along at about 85 miles per hour on the wide-open interstate. Around 4 p.m., Cantrell was jarred awake when one of the tires blew out. He woke up just in time to see the vehicle swerve to the left and overturn in the wide median. The top of the Jeep flew open, and all aboard were thrown onto the grass. "I was the only one seriously injured, Cantrell said. "When we swerved to the left, I remember the motion of falling to the right. And I remember waking up on the ground. I remember the policeman and people talking to me." He can't remember how long he waited for ambulance technicians to take him to a hospital in nearby Sallisaw, hut he does remember feeling sorry for one of his friends. "In the ambulance, my friend was screaming and yelling," he said. "He was in more pain than I was because I couldn't feel anything. I knew I had a broken neck, but I thought, 'Well, I'll go to the hospital, and they will make me better.'" Cantrell soon found out that his treatment wouldn't be quite that simple. After the accident, he underwent torturous occupational therapy before he was allowed to return to his parents' home in Opelika, AL. Depressed and angry, he moved into his own trailer home a year later. Cantrell said it took him nearly four years to shake the feeling that he "was the most pitiful thing on God's green earth." Then he began to fight back. He learned how to drive a specially designed van, and he earned an associate's degree in computer information systems. He resumed his social life, was married in 1992 and moved to Memphis, TN, where he found a job as a counselor with Paralyzed Veterans of America. But three years later, Cantrell's wife left him. Around that time, Farris Hodges, chief of the Prosthetics Center at the Department of Veterans Affairs Medical Center in Memphis, got a phone call from Cantrell. "He was extremely depressed," said Hodges, a veterans who lost the use of his legs and one arm after stepping on a land mine in Vietnam. "He called me and said, 'I can't do anything." Cantrell couldn't turn on the lights in his ranch-style Memphis home. He couldn't operate his television or his home computer, which he refers to as his lifeline. But all that changed when "Dilbert" entered his life in 1996. Dilbert is what Cantrell has nicknamed - after his favorite cartoon character - his personalized Environmental Control System, a computer system provided by the VA. ECS uses voice recognition and the existing wiring in Cantrell's house to perform tasks such as opening doors and dialing the telephone. "It's really been a lifesaver for me, as far as allowing me to be independent," said Cantrell, 34. "There's no match for it." Besides giving veterans the ability to perform tasks they otherwise could not, the systems give them the psychological and emotional boost that comes with achieving goals on their own. ECS "illustrates the difference between not being able to do anything for yourself and being able to do everything," Hodges said. "Think about being in your home and not being able to do the simplest things like turning on a ceiling fan or turning on a light in a room. You're just stuck there. ECS is like the difference between day and dark." Sal Sheredos, program manager for technology transfer at the VA's Rehabilitation Research and Development Service, said the Department began developing ECS technology after Life magazine reported in the early 1970s on paraplegic Vietnam veteran Ron Kovic, the subject and author of the book Born on the Fourth of July, which later became a film. Responding to the publicity generated by the Life article, the VA Prosthetic Center began developing technology to ease the burden of veterans such as Kovic. The VA awarded a contract to a new company, Prentke Romich Co., to provide prototype ECS units to VA spinal cord centers across the country. The units were evaluated and improved, and manufacturers used the VA's work as a springboard for their own innovations. The entire development effort cost less than $1 million, Sheredos said. Sheredos estimated that the VA has provided systems for about 6,500 veterans, a fraction of the number of people in the general population who have benefited from ECS technology. The VA no longer invests in ECS development. "It is a priority in terms of providing it to veterans, but we don't have any development going on, Sheredos said. "We showed manufacturers there is a market for ECS, and that kind of snowballed into a whole industry." The early systems were crude and used a pneumatic "sip-and-puff' tube. By creating air pressure within the tube by inhaling or exhaling, users could send electronic signals to a central unit at their bedside and call up menus listing devices - such as televisions and ceiling fans - that the system controlled. The older systems had an unfriendly user interface and only allowed veterans to control items in the room in which the unit was installed. Some systems also precluded other people from manually operating the connected devices. In the 1980s, the VA moved to a computerized ECS based on off-the-shelf interface technology. Since then, the agency has farmed out much of its ECS work to private companies and is incorporating off-the-shelf solutions, such as voice recognition. Newer systems, such as the Simplicity model from Quartet Technology Inc. that Cantrell uses, rely on voice recognition. Users love the feature, but it can be an annoyance if the user has a cold or laryngitis. When that happens, the system needs to be reprogrammed to respond to the user's "new" voice. During installation, which generally takes less than a week, home devices such as light switches are fitted with receivers that accept infrared signals from the ECS. ECS can open and close doors augmented with hydraulic systems and electronic switching mechanisms that release a striker when activated by a user's voice. A basic Simplicity ECS costs about $6,000 but can cost substantially more depending on the number of devices connected to it Hodges said. Cantrell's system cost $11,000. The systems are capable of hundreds of functions ranging from pointing and clicking a mouse to adjusting the vertical hold of a television. They can dial and answer phones and can store frequently used phone numbers. Veterans can specify whether they want their ECS to have a male or female "voice", and all of the systems are unfailingly polite. A typical conversation between Cantrell and Dilbert, which, of course, has a male voice, proceeds as follows: "Dilbert?" "Yes." "Light." "Excuse me?" "Light." "Light." "Open." "Thirteen." This number specifies which light fixture is being controlled. "Turn." "Turn on." The light in Cantrell's bedroom goes on, something Cantrell could not do before Dilbert arrived. Like Cantrell, John Moore realized he needed an ECS after a divorce left him stranded without a caregiver in his Memphis home. Moore, a former ship repairman for the Navy, became a quadriplegic in 1952. He tried to help a 5 year-old retrieve a lost ball at an office picnic. The child's ball had rolled into a stream. Moore, noting that the water was too deep for the child, dove in after the ball. He broke his neck. It was just one of those weird accidents," Moore says. "I was conscious enough to hold my breath. But I knew I couldn't get myself over on my back. All I could do was wiggle my shoulder. I just held my breath until they got me out." Moore was rushed to the University of South Carolina hospital, where he under went surgery. He was heavily medicated for about four months, after which he became aware of the extent of his injuries. Moore first tried having a live-in aide help him, but "they just don't work," he said. Some people are real nice for a few months, but then, next thing you know, they are leaving you laying in bed while they take your wallet and walk out the door. I've had that happen to me. Moore, 39, received his ECS in January, and he uses it to control his TV and his lights. Being able to control his overhead lights put an end to the sleepless nights Moore had when his nurse would leave and forget to turn off the lights. in February, he was awaiting installation of door controls for the ECS. "Whoever came up with this system had a great idea," Moore said. "After I got this, I realized I depended on someone else for everything. Now I don't have to. [ECS] gives me that freedom. A little more independence is a lot more." ECS, like any technology, is susceptible to glitches. For example, a dead battery prevented Moore from demonstrating how he uses his system. Cantrell said even a slight change in the placement of his ECS antenna makes it impossible for him to control his doors. He recalled how his remote unit for sending ECS signals throughout the house went dead one day, forcing him to prop open his backdoor with a towel for hours so that he could re-enter the house after leaving for an appointment. Despite some minor problems, veterans who use ECS say it has been nothing short of miraculous in their lives. James Kennon may end up being the first lawyer who used an ECS to obtain his degree. Petty Officer 2nd Class Kennon was 25 and a Navy paralegal when his neck broke after his pickup truck flipped over when he swerved to avoid running over a dog. He lost the use of his legs and arms and was put on a ventilator for three months. After more than nine months in the VA Medical Center in Memphis, he returned home to live with his mother in Tulsa, OK. Three years later, he is attending the University of Tulsa Law School and credits his ECS with making it possible. The system, using Dragon Dictate software from Dragon Systems Inc., allows him to access documents from the law library via the Internet. He also can send and receive e-mail and write papers without assistance. The system has been a blessing not only to Kennon but also to Tina Nelson, his girlfriend, who shares his home. Nelson said she spent countless frustrating hours typing papers as Kennon dictated. "It's so much easier now. All I do is put the headset on him and shut the door," she said. Perhaps even more important, ECS technology coupled with Kennon's optimism that a cure for his paralysis is near - has given him confidence that he will be able to practice law after he graduates. "I am absolutely convinced a cure is in the making right now," he said. But even if I get out of law school and conditions are still like this, I do believe that, with this computer and this system, I'm going to be able to work. I'm sure of that." ECS Components Hardware: Quartet Technologies Inc, models include lamp and appliance modules. X-10 circuit modules, remote-strike release kits, microphone kits, motion-sensing light detectors and wireless remote speakers. Voice mouse keyboard also by Quartet. Software: Dragon Dictate Version 3.0 voice-recognition software for interfacing with PC.